from mckMama's blog this morning,
Stellan was at peace when I said goodbye to him this morning and is in surgery now. We had a very long night and he ended up getting sedated so he could rest. Here he is right before he got put on the ventilator for surgery.
Amazingly, I am at peace as well.
I expect to hear a few updates during the morning, with the entire procedure expected to last at least three hours. If possible, I will update or have someone do it in my stead as things go along.
In the meantime, please pray for Stellan and for all hands involved in his care today. My friend Amy will be continually updating the post below during the entire time Stellan is in surgery.
"And the peace of God, which transcends all understanding, will guard your hearts and your minds in Christ Jesus."
It has been almost 5 weeks since Stellan first entered the hospital. Last week he and his mommy transferred to Boston where the second opinion doctor took over Stellan's care. Technology has certainly played a part in making Stellan's little heart continue to fight as well as allowing MckMama to keep us up to date on Twitter. This is what she has said since late last night,
I'm going to work on a post now about all the details regarding how it went. It was a complicated situation and Dr. A did the best he could.7 minutes ago from web
They will extubate him a bit later. He needed a blood transfusion earlier and he's still finishing that up. He looks so sweet and peaceful.8 minutes ago from web
Stellan made it through!!! I am with him now in recovery. They are going to leave him under for a while, since the procedure took so long. 12 minutes ago from web A bit of news trickled back to me: there is a lot of fluid in Stellan's lungs and tissues.29 minutes ago from txt
Yes it's been over three hours, no I haven't heard any update at all.
about 1 hour ago from txt
Stellan is sedated and intubated (he's on the ventilator, which is breathing for him), will be heading into surgery any minute now.
about 5 hours ago from web
Okay, now Stellan has flipped back out and is asleep. I cannot believe this is my life right now. It's like a bad dream. A really bad dream.
about 10 hours ago from web
The anesthesia team was in here. They may put Stellan under & intubate him. Waiting...about 10 hours ago from txt
...breaking my heart so my dad is taking a turn rocking him and Stellan is relaxed now.about 11 hours ago from txt
He is on oxygen and has been desperately trying to nurse as I rocked him. It was...
about 11 hours ago from txt ...shots of Adenosine broke it temporarily, but now his is back in (narrow) SVT.about 11 hours ago from txt
...a wide QRS complex. It was SVT with abberancy. Two...
about 11 hours ago from txt It was a long hour. Stellan went into what looked like v tach, but was actually...about 11 hours ago from txt
...he is accepting his pacifier & sugar water as a substitute right now since he can't eat.about 12 hours ago from txt I am just rocking him right now. He's awake and I know he's hungry. Thankfully...about 12 hours ago from txt
He is still in SVT but his rate is down from 250s to 210s now.
about 12 hours ago from txt The goal is to hold off until the morning for surgery if we can. That is looking probable.about 12 hours ago from txt
"And miles to go before we sleep."about 12 hours ago from txt
The news about Stellan is getting better but he is just out of surgery, but well enough that MckMama is getting somethng to eat and making jokes again. We are now becoming community in a whole new way - over 9000 people on Twitter have brought Stellan and his family into their their own worlds ever though we will never meet in person. I spent the better part of my day praying for their family and checking in for updates. Sounds like a family to me. Technology and Jesus make for quite a day. If you are interested in Stellan's full diagnosis by Dr A, check out MckMama's blog post, A Good Play With An Awful Hand at www.mycharmingkids.net
